Dear Family and Friends,
I hope these emails haven’t become like hearing about the daily shoe and coat sale at Land’s End or Macy’s!:) Ella Cate continues to do well for which we are very grateful. She turned 4 on the 22nd and had a very happy birthday with plenty of cake and face painting. She will start soccer in April (pending approval of Dr. G as she still has her port in her chest). Can't wait to watch a herd of 4- 6 year olds chase the ball back and forth down the field! This week she will have her hearing tested to determine what damage was done from two of the chemotherapy drugs (cisplatin and carboplatin) with which she was treated. In all likelihood, she may have to wear hearing aids for high pitch frequency hearing loss. I secretly wish of course this weren’t the case but really, in the grand scheme of her life (because she has a chance at one!) this is an reasonable price to pay. Her next MRI is April 26th.
The Angels Among Us 5k Run/Family Fun Walk, benefiting the Tisch Brain Tumor Center at Duke is about 5 weeks away, on April 28th. Our new friends through cancer, the Lazenby's, whose daughter Hannah, has the exact same diagnoses, will not be in attendance at the walk this year but will be with us in spirit. Hannah, who is now 10, is the longest known survivor of medulloblastoma without radiation treatment (7 years + in remission). Due to a genetic condition (Gorlin’s Syndrome,) Hannah and Ella Cate are not recommended for radiation treatment due to likelihood of development of basal cell carcinomas. This is true for all young children as their brains are still developing but particularly so for our girls. From the limited data available on Gorlin's syndrome folks, they appear to respond relatively better to treatment than those without genetic conditions. Both girls had a favorable subtype of medulloblastoma as well, which contributes to a better prognosis. With advancement of research, the 5 and 10 year survival rates have greatly improved over the 20-40% in the 1980s and before. We would be honored and forever grateful to have you join our team, "Ella Cate's Enduring Angels", to help fight brain tumors and continue to advance treatments and have these special girls and others lead happy, productive and long lives. Ella Cate will get her survivor bandanna and get to help lead the parade behind the bagpipes. I can cry now just thinking about it! She was unable to be there last year as she was on the Duke Pediatric Blood and Marrow Transplant Unit recovering from high dose chemo and stem cell transplant. See link below for info on the event and/or donations.
Thank you so much for your continued thoughts and prayers. Thanks to those who have joined the team already and we hope to grow in the next few weeks.
We hope this message finds you happy and healthy!
Lori, Greg, Easton and Ella Cate
our team link. Or go to Angels Among Us.
Please pray for this littlest among us. In the Name of God...
St. Gerard, who, like the Savior, loved children so tenderly and by your prayers freed many from disease and even death, listen to us who are pleading for this sick child. We thank God for the great gift of this child and ask him to restore her to health if such be His Holy Will. This favor, we beg of you through your love for all children and mothers. Amen.
past articles about little Ella, here...and here...
If you can help financialy please do, and if not please pray...
This letter was reformated for this blog.